IPWSO is an international non-profit membership organisation supporting national Prader-Willi syndrome associations, as well as people with PWS, their families and the professionals who work with them.

 

As an international umbrella organisation we bring together the national Prader-Willi associations, and for countries where there are no formal associations, we support medical and parent delegates as part of our global community. IPWSO has contacts in over 100 countries, and is a world-wide parent-led support organisation. One of our key projects is to offer free diagnosis for PWS in countries where this is not available.

 

Prader-Willi syndrome (PWS) is a rare, genetically determined and complex neurodevelopmental syndrome that is apparent at birth and associated with a range of health problems affecting different systems of the body. It affects all races and both sexes equally. There are very marked differences in the level of knowledge and services for people with PWS around the world giving rise to marked health inequalities globally.

 

A world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals.

 

To unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.